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Un aniversario y una buena causa

PepsiCo Iberia - Dec 22, 2015
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Este post es una invitación de PepsiCo a contar más sobre la colaboración que estamos llevando a cabo. No es la primera vez, tal como lo comentaba el año pasado en el post “Donar a la investigación reciclando” Alberto Biguri, un empleado de PepsiCo y padre de una niña afectada con el síndrome de Rett.

Pero antes, me gustaría daros un poco más de información sobre nuestra institución. El Hospital Sant Joan de Déu es un centro de referencia a nivel nacional e internacional en asistencia e investigación pediátrica. Es el hospital infantil más grande de España,  con  más de 24.000  ingresos de pacientes al año.

Es también  un centro  de referencia en enfermedades raras,  entre ellas el síndrome de Rett,  un trastorno relacionado con el cromosoma X, causado mayoritariamente por mutaciones en el gen MECP2, y que afecta a 1 de cada 10.000 mujeres. A pesar de ser considerada enfermedad rara, es la causa principal de retraso mental en niñas. La enfermedad afecta a más de 3.000 personas en el estado español y cerca de 300.000 en todo el mundo.

Para entender la enfermedad imaginad una orquesta con músicos e instrumentos pero con un director que no puede dirigirlos, cada instrumento suena descoordinadamente e imposibilita una interpretación correcta. Esto es lo que pasa con las niñas con síndrome de Rett: a pesar de que sus órganos estén sanos, las órdenes no llegan correctamente desde el cerebro, y eso les puede llevar a la incapacidad casi absoluta.

La investigación es la clave para mejorar la calidad de vida de las  niñas afectadas. El estudio genético y clínico es fundamental para avanzar en su tratamiento,  por esto un equipo de neurólogos y genetistas del hospital  investigan el síndrome de Rett. La investigación que se realiza en nuestro centro  desde hace más de 10 años, ha sido posible gracias a los recursos aportados por familias, fundaciones privadas y empresas. Pero aún queda mucho por hacer y avanzar. Por ello es fundamental recibir donaciones como la de PepsiCo Foundation, con motivo de su 50º aniversario, por la cual ha querido destacar el compromiso de la compañía en obtener buenos resultados pero haciéndolo de la manera correcta para la gente y sus comunidades alrededor del mundo. Mediante la iniciativa “50-50 Community Give Back” los empleados han escogido diferentes organizaciones locales y nosotros hemos sido uno de los beneficiados para España. En nuestro caso es un apoyo solidario dirigido  a mejorar la salud de las niñas afectadas,  un reconocimiento  y un gran apoyo al trabajo de investigadores.

Esta donación la destinaremos a desarrollar un proyecto enmarcado en uno de los objetivos principales de nuestra investigación, las aproximaciones terapéuticas en pacientes. Se trata de realizar una descripción de mapas funcionales cerebrales mediante la aplicación de técnicas avanzadas de neuroimagen y electrofisiológicas. Estos estudios permitirán la utilización de diversas tecnologías y estrategias basadas en el principio de la neuromodulación cerebral, que se aplicará como herramienta terapéutica de neurorehabilitación  individualizada. El estudio trabajará para conseguir la mejora de diferentes problemas y habilidades neurológicas en estas pacientes. Permitirá hacer un trabajo intensivo durante varias semanas en grupos seleccionados de 4 pacientes que irán rotando a lo largo de todo un año y trabajando diferentes problemas médicos: la epilepsia, la mejoría de los aprendizajes y la comunicación, las estereotipias….

Si los resultados obtenidos  del estudio corroboran la efectividad del  tratamiento de Neurorehabilitación, el siguiente paso será valorar cómo estos tratamientos pueden aplicarse de una manera rutinaria a todas las pacientes afectadas, como Martina, Nerea, Andrea, Maria, Julia, Patricia, Maialen, además de la hija de Alberto.

Estamos muy agradecidos a PepsiCo Foundation y a los trabajadores de PepsiCo  España por ser partícipes del proyecto de Hospital Sant Joan de Déu  y colaborar en  mejorar la calidad de vida de nuestros pequeños pacientes.

  • Voluntariado
  • Síndrome de Rett
  • Responsabilidad Social
  • PepsiCo Iberia
  • pepsico
  • Hospital Sant Joan de Déu
  • Historias PepsiCo
  • donaciones
  • campaña 50-50
PepsiCo Iberia
PepsiCo Iberia

En PepsiCo ofrecemos el mayor portafolio de marcas de bebidas y de alimentación en todo el mundo con miles de deliciosos productos de reconocido prestigio. En PepsiCo Iberia operamos en España y Portugal, produciendo y comercializando un amplio abanico de productos de alimentación y bebidas de marcas reconocidas como Pepsi, Kas, Gatorade, Lay’s, Matutano, Alvalle y Tropicana, entre otras. Todas ellas agrupadas en 2 divisiones de negocio: PepsiCo Foods Iberia y PepsiCo Bebidas Iberia. Para más información www.pepsico.es.

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